NYSILC’s Statewide Consumer Needs Assessment Survey is Out!

This survey is for all New Yorkers with disabilities. It is our most important tool to find out what needs are not currently being met around the state. Please consider completing the survey and sharing it with your peers in the disability community. Your answers will help us make sure that your needs are included in the upcoming State Plan for Independent Living.

Federal RIF Threatens Essential Disability Protections, Services

These layoffs reverse decades of progress in disability rights and put the health, stability, and welfare of millions at risk.
Click/copy the link below to tell the White House that you oppose these RIFs and demand that essential positions be restored immediately.
https://aapd.quorum.us/campaign/144743/?utm_source=Main+AAPD+Mailing+List&utm_campaign=b3877092ba-EMAIL_CAMPAIGN_2025_10_15_25&utm_medium=email&utm_term=0_-afb89cbdef-4877585

Participants Needed for Health-Related Needs Survey

Please consider supporting the work of our colleagues from the School of Health Sciences at Hofstra University by sharing your opinions about health-related needs on Long Island. If you would like to fill out the survey, any information you share will not be shared...

You’re Invited: Share Your Voice in New York’s Olmstead Listening Sessions

Via Olmstead Plan NY:
New York State is working on a new Olmstead Plan — a plan that helps make sure people with disabilities can live in the community they choose, with the support they need.  
To help shape this work, we’re hosting nine virtual listening sessions, and we want to hear from you. 

Medicaid Matters New York Condemns Passage of Rushed, Inhumane Federal Budget Reconciliation Bill

July 3, 2025 – A budget is a moral document, creating the framework for how a government will provide public services.  H.R. 1, which Republican leaders have dubbed “beautiful,” is anything but beautiful for people with low income and people with disabilities who need health coverage.  It will strip affordable health insurance coverage away from millions of Americans who don’t have other coverage, including 1.5 million people here in New York. 

Sign up for Barnard College Disability Benefits Research Study

Join a study about people who live in New York and are “on disability”, led by undergraduate thesis student Myriam Joseph-Schilz (msj2155@barnard.edu). I’m looking to center people’s own narratives of their experiences with disability benefits programs, and the decisions they make through, after, and beyond their application processes, in order to highlight a perspective often overlooked in academic research.